Links

http://www.wearehd.org

Share, talk, communicate in a user led social network for individuals, family members and those members of the community. Share the wealth of your experience and plan for the future with those like you. Find others with similar interests and goals.

http://www.pacinparson.org

http://www.travelpod.com/travel-blog/donstevenson/1/tpod.html 

Find out where Don Stevenson is on his 3,000 mile journey from Seattle to NYC, raising money and awareness for Huntington's Disease.

http://www.hdlighthouse.org

The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.

http://www.hdac.org

Huntington's Disease Advocacy Center. Much useful information on many aspects of Huntington's Disease.

http://www.hddrugworks.org

Huntington's Disease Drug Works (HDDW) was founded by LaVonne and Nathan Goodman in 2004 for the primary purpose of following participants in the Huntington's Disease Drug Works trials.

http://www.hdfoundation.org/index.html

The homepage of the Hereditary Disease Foundation with links to information about many different aspects of HD.

http://hopes.stanford.edu

Created by a team of faculty and undergraduate students at Stanford University, this web site provides detailed descriptions of current scientific understanding of HD.

http://hdroster.iu.edu/

A roster of HD families & individuals; a lot of the researchers are able to contact people for specific studies on HD.

http://www.hdsa.org

The homepage of the Huntington's Disease Society of America.

http://www.hsc-ca.org

The homepage of the Huntington Society of Canada.

http://www.kumc.edu/hospital/huntingtons

Many links to information about caring for people with Huntington's Disease.

http://www.brainbank.mclean.org/

The Harvard Brain Bank accepts brain donations from deceased HD patients to study the changes in the brain.

http://carmenleal.com/index.html

Information about the latest books on Huntington's Disease from the well known author Carmen Leal

http://clix.to/FinalJourney

Useful information about end of life planning including estate planning, wills, powers of attorney, and advance directives.

http://www.huntington-study-group.org

The Huntington Study Group. A excellent page for keeping up with latest Huntington's Disease research findings and studies.

http://www.medicare.gov/NHCompare/home.asp

Directory of every Medicare and Medicaid certified nursing home. Includes latest nursing home inspection reports.

http://www.healthgrades.com

Comprehensive nursing home ratings.

Clinical Research

Clinical Research in Huntington's Disease

This document provides a good introduction to clinical research in Huntington's Disease.

Mailing List

http://www.lib.uchicago.edu/~rd13/hd/mailing.html

Mailing List for Huntington's Disease (Hunt-Dis). Instructions for how to subscribe to the electronic discussion group for Huntington's Disease.